Categories

Archives

Recent Posts

  • Colorize Me

    As seen over on Swirlychick’s LJ, the ColorQuiz. Give it a try.

    200509281758 Gregory+Blake took the free ColorQuiz.com personality test!

    “Takes easily and quickly to anything which provide…”

    Click here to read the rest of the results.

    As usual with these quizzes I take things with a grain of salt. I think the one thing that really rung true for me was the line “Anxious to experience life in all its aspects, to explore all its possibilities, and to live it to the fullest.” This has definitely been a big issue for me post transplant. And I’m still kind of rediscovering myself too, the whole experience has definitely changed me a bit.

  • New Orleans

    I’ve been meaning to post something about New Orleans and the hurricane for a few days now. For me the big positive news is that my sister is safe. She got out of town Sunday and stayed with friends in FL. Now she’s up in the Baton Rouge area and trying to keep busy (she volunteered at the Red Cross the other day). My nephew is with her and doing just fine also. He’ll hopefully be attending school up there while they wait for school to be available around his father.

    As of right now, she still has a job at the Tulane Medical Center. Though there’s been no word about when she might be back at work. Something that’s true for just about anyone who works in NO.

    It also looks like her apartment may be safe. We can’t tell for sure, but it seems to be right on the edge of some flooding. Her apartment is on the first floor, but it is up a number of steps, so I think she’s got something like 4 feet before the water would get into her actual apartment. Our fingers are crossed.

    Also, via LJ user Tenzil, a really good article over on CNN about The Big Disconnect. Good, but a bit disturbing.

  • Back in Boston

    Well, I’m back in Boston for another three day hospital stay. Three days of steroid treatments to get rid of a little bit of rejection that is still left from the last time. Three days of boredom. Anyone want to bring over a DVD to watch?

  • Evel Knievel and IPF

    The Billings Gazette has an article up about how Evel Knievel has Ideopathic Pulmonary Fibrosis (IPF).

    TWIN FALLS, Idaho – Evel Knievel may have finally met his match. And he’s not going to clear this hurdle.

    Renowned for his death-defying stunts, Knievel has now landed in major medical trouble. He says his doctors give him three to five years to live.

    Knievel suffers from idiopathic pulmonary fibrosis, a condition that scars the lungs, replacing the air sacs with scar tissue. As the scars form, the tissue becomes thicker, reducing the lung’s ability to absorb oxygen. There is no cure. [BillingsGazette.com]

    Here’s sending my best, it’s a horrible disease.

  • Happy 4th!

    Happy 4th of July everyone. I haven’t been posting much because I just haven’t felt like I’ve had much to say. But the last day or two I’ve been feeling a little bit more talkative and it finally reached critical mass.

    My sister and nephew are here visiting for the week, which is nice. My nephew is all about playing Pokemon on his GBA. He keeps wanting to trade with me (Yes, I have it too.) The problem is I haven’t played in months and have no idea how I got different Pokemon. Though he’s since educated me on how to evolve all kinds of various ones (whether I wanted to know or not). He’s a good kid, needs to listen to his mom more, but a good kid.

    I also missed my goal of walking around the block. Mostly because the weather was pretty oppressive last week, not the best conditions for pushing myself some. Instead I walked all the way down to the CVS on Friday, which is considerably longer than going around the block.

    I’ve also been poking around at dating sites online. I’m kind of curious to hear what sites people like. I think I had a profile on match.com years and years ago, but it’s probably long gone. Anyone have any favorites?

  • Hospital – Day 3 – Escape!

    Today at around 1:30pm I’ll be escaping the hospital and heading home. This has been quite the uneventful stay, but that was pretty much to be expected. I also won’t really know the results of my stay for a few weeks. The downside is that my Prednisone dose will go up for a few weeks. Hopefully I won’t put on the same amount of weight as I had. I’m just shy of where I want to be.

    Also, having the laptop has been a big lifesaver. I’ve made it through two DVDs and been able to interact with people on-line. Much nicer than just staring at the wall for hours and spacing out. Next time I’ll have to let more people know that I’m going to be having a hospital stay so I can get more visitors (thanks for stopping by this moring Ece!).

    And the nurse has just arrived for my last steroid dosage for my stay, which will take around an hour.

  • Back in the Hospital

    As I said in my last post I’m back in the hospital for three days to get some nice high doses of steroids to combat some acute rejection. This is fairly run of the mill stuff, no need to panic or anything. I actually feel fine, the goal is to nip this in the bud before it gets serious.

    Given that there’s not a heck of a lot to do here I’ll possibly be posting a bit more often than I have been.

  • Lung Update

    Last Tuesday I had a bronchoscopy, which is a fun procedure where they send a scope down into your lungs to make sure everything is okay. In my case there was a little bit of inflammation, which can be a sign of rejection. As a result they want me to come in for three days to get some high doses of anti-rejection medications via IV.

    So on Monday I’ll be going into the hospital till Wednesday. If I get my act together I’ll set up a dial-up account before then so I can be online from the hospital this time.

  • Hot Damn, Pt. 2

    I made it to the end of the street and back. The key thing to do I’ve discovered is wake up early an do it before the day warms up. Next up is to make it halfway around the block, which will mean I can hopefully go the rest of the way around the block to return :).

  • Hot Damn

    Just now I made it up the stairs from the first to the second floor without using my cane. I never thought I’d be so excited by stairs. The lung is working great still, every bit of exercise makes me feel a bit stronger. My next goal is to be able to walk around the block by the end of the month.